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To help with early diagnosis and treatment of haemochromatosis, the Australian Government is supporting Haemochromatosis Australia to create a new, nationwide, cloud-based patient registry.
The registry will collect health data from patients across the country. This data will help:
- develop new treatments for haemochromatosis
- understand its role in chronic conditions like liver disease, arthritis, diabetes, heart issues, and brain health.
How you can help
The registry was launched on 14 August 2024, and is open for registration. https://registry.haemochromatosis.org.au/ For more information about haemochromatosis, visit www.ha.org.au or call 1300 019 028. Be part of this project and help improve the future of haemochromatosis treatment and research!